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X-WR-CALNAME:PURA Syndrome Foundation
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X-WR-CALDESC:Events for PURA Syndrome Foundation
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DTSTART;TZID=America/New_York:20240717T103000
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DTSTAMP:20260423T151303
CREATED:20240715T233354Z
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UID:2098-1721212200-1721215800@purasyndrome.org
SUMMARY:Together for PURA Kickoff Meeting 1
DESCRIPTION:Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research\, as well as serve and empower families impacted by PURA Syndrome? WE can do this\, and you can help! Many of you have indicated that you would like to host an event or do “something” to raise money. If we all do “something\,” big or small\, we will reach our goal! \nOn Wednesday\, July 17\, we will offer a two special zoom sessions hosted by board members Nancy Boccia and Melissa Vaught\, on Everything You Need to Know to Plan a PURA Perfect Fundraiser.  No fundraiser is too small and you can all be part of this. Our goal is to have 100+ teams…imagine what we can do! \nClick here to register for the July 17\, 10:30 am ET session \nIf you have any questions or are unable to attend and would like more information\, please contact n.boccia@pura-syndrome.org. Hope to see you all there and get your ideas and questions ready!
URL:https://purasyndrome.org/event/together-for-pura-kickoff-meeting-1/
LOCATION:Virtual
CATEGORIES:Fundraiser
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DTSTART;TZID=America/New_York:20240717T190000
DTEND;TZID=America/New_York:20240717T200000
DTSTAMP:20260423T151303
CREATED:20240715T233759Z
LAST-MODIFIED:20240715T233759Z
UID:2101-1721242800-1721246400@purasyndrome.org
SUMMARY:Together for PURA Kickoff Meeting 2
DESCRIPTION:Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research\, as well as serve and empower families impacted by PURA Syndrome? WE can do this\, and you can help! Many of you have indicated that you would like to host an event or do “something” to raise money. If we all do “something\,” big or small\, we will reach our goal! \nOn Wednesday\, July 17\, we will offer a two special zoom sessions hosted by board members Nancy Boccia and Melissa Vaught\, on Everything You Need to Know to Plan a PURA Perfect Fundraiser.  No fundraiser is too small and you can all be part of this. Our goal is to have 100+ teams…imagine what we can do! \nClick here to register for the July 17\, 7:00 pm ET session \nIf you have any questions or are unable to attend and would like more information\, please contact n.boccia@pura-syndrome.org. Hope to see you all there and get your ideas and questions ready!
URL:https://purasyndrome.org/event/together-for-pura-kickoff-meeting-2/
LOCATION:Virtual
CATEGORIES:Fundraiser
END:VEVENT
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