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SUMMARY:Registry Meet-Up #1: November 2
DESCRIPTION:This meet-up has been scheduled to help families fill in the Global Patient Registry. Please be sure to visit our webpage at purasyndrome.org/registry to ensure your account is set-up prior to the meeting. On that same page is a checklist of items that would be helpful to have gathered prior to the meeting as well. \n\n 
URL:https://purasyndrome.org/event/registry-meet-up-1-november-2/
LOCATION:Virtual
CATEGORIES:Meet-Up
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