BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//PURA Syndrome Foundation - ECPv6.16.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://purasyndrome.org
X-WR-CALDESC:Events for PURA Syndrome Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240817T110000
DTEND;TZID=America/New_York:20240817T150000
DTSTAMP:20260513T223023
CREATED:20240726T201648Z
LAST-MODIFIED:20240726T201716Z
UID:2158-1723892400-1723906800@purasyndrome.org
SUMMARY:Lemonade Stand for PURA
DESCRIPTION:Join us for our Together for PURA Lemonade Stand at Belsan Bait & Tackle on August 17\, 2024 from 11 am – 3:00 pm in Scituate\, MA.\nBuy a “virtual” glass of lemonade here to support PURA.\n\nHosted by Vivienne Conrad and her grandmother\, Nancy Boccia
URL:https://purasyndrome.org/event/lemonade-stand-for-pura/
LOCATION:Belsan Bait & Tackle\, 4 Brook St\, Scituate\, MA\, 02066\, United States
CATEGORIES:Fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240808T190000
DTEND;TZID=America/New_York:20240808T220000
DTSTAMP:20260513T223023
CREATED:20240726T201250Z
LAST-MODIFIED:20240726T201250Z
UID:2150-1723143600-1723154400@purasyndrome.org
SUMMARY:South Bend Cubs Game to Benefit the PURA Foundation
DESCRIPTION:Come out to Four Winds Field in South Bend\, IN on August 8th to raise awareness for the PURA Syndrome Foundation! Every ticket purchased donates $3 back to the PURA Syndrome Foundation. \n\nBuy Tickets here to attend the game\nDonate to Teresa’s fundraiser here to support PURA\nHosted by PURA Mom\, Teresa Hayden
URL:https://purasyndrome.org/event/south-bend-cubs-game-to-benefit-the-pura-foundation/
LOCATION:Four Winds Field\, South Bend\, IN\, 46601\, United States
CATEGORIES:Fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240717T190000
DTEND;TZID=America/New_York:20240717T200000
DTSTAMP:20260513T223023
CREATED:20240715T233759Z
LAST-MODIFIED:20240715T233759Z
UID:2101-1721242800-1721246400@purasyndrome.org
SUMMARY:Together for PURA Kickoff Meeting 2
DESCRIPTION:Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research\, as well as serve and empower families impacted by PURA Syndrome? WE can do this\, and you can help! Many of you have indicated that you would like to host an event or do “something” to raise money. If we all do “something\,” big or small\, we will reach our goal! \nOn Wednesday\, July 17\, we will offer a two special zoom sessions hosted by board members Nancy Boccia and Melissa Vaught\, on Everything You Need to Know to Plan a PURA Perfect Fundraiser.  No fundraiser is too small and you can all be part of this. Our goal is to have 100+ teams…imagine what we can do! \nClick here to register for the July 17\, 7:00 pm ET session \nIf you have any questions or are unable to attend and would like more information\, please contact n.boccia@pura-syndrome.org. Hope to see you all there and get your ideas and questions ready!
URL:https://purasyndrome.org/event/together-for-pura-kickoff-meeting-2/
LOCATION:Virtual
CATEGORIES:Fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240717T103000
DTEND;TZID=America/New_York:20240717T113000
DTSTAMP:20260513T223023
CREATED:20240715T233354Z
LAST-MODIFIED:20240715T233658Z
UID:2098-1721212200-1721215800@purasyndrome.org
SUMMARY:Together for PURA Kickoff Meeting 1
DESCRIPTION:Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research\, as well as serve and empower families impacted by PURA Syndrome? WE can do this\, and you can help! Many of you have indicated that you would like to host an event or do “something” to raise money. If we all do “something\,” big or small\, we will reach our goal! \nOn Wednesday\, July 17\, we will offer a two special zoom sessions hosted by board members Nancy Boccia and Melissa Vaught\, on Everything You Need to Know to Plan a PURA Perfect Fundraiser.  No fundraiser is too small and you can all be part of this. Our goal is to have 100+ teams…imagine what we can do! \nClick here to register for the July 17\, 10:30 am ET session \nIf you have any questions or are unable to attend and would like more information\, please contact n.boccia@pura-syndrome.org. Hope to see you all there and get your ideas and questions ready!
URL:https://purasyndrome.org/event/together-for-pura-kickoff-meeting-1/
LOCATION:Virtual
CATEGORIES:Fundraiser
END:VEVENT
END:VCALENDAR