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BEGIN:DAYLIGHT
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DTSTART:20241103T060000
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
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DTSTART:20220313T060000
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BEGIN:STANDARD
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DTSTART:20221106T050000
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BEGIN:DAYLIGHT
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DTSTART:20230312T060000
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BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
TZNAME:AST
DTSTART:20231105T050000
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
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BEGIN:STANDARD
TZOFFSETFROM:-0300
TZOFFSETTO:-0400
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20260301T090000
DTEND;TZID=Asia/Kolkata:20260301T100000
DTSTAMP:20260513T170022
CREATED:20260201T032942Z
LAST-MODIFIED:20260201T032942Z
UID:3082-1772355600-1772359200@purasyndrome.org
SUMMARY:First Meet Up for PURA Families in India
DESCRIPTION:The PSF will be hosting a virtual meet-up for any of our families from India on Sunday\, March 1\, at 9:00 am IST. If you would like to join this meet-up please be sure to register here.
URL:https://purasyndrome.org/event/first-meet-up-for-pura-families-in-india/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251011T150000
DTEND;TZID=America/New_York:20251011T160000
DTSTAMP:20260513T170022
CREATED:20250904T182810Z
LAST-MODIFIED:20250904T182810Z
UID:2821-1760194800-1760198400@purasyndrome.org
SUMMARY:All are Welcome Meet-Up October 2025
DESCRIPTION:All are welcome for a meet-up of any families that can join us! Questions? Contact Melissa at m.vaught@pura-syndrome.org
URL:https://purasyndrome.org/event/all-are-welcome-meet-up-october-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="PURA Syndrome Foundation":MAILTO:m.vaught@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250914T160000
DTEND;TZID=UTC:20250914T170000
DTSTAMP:20260513T170022
CREATED:20250807T161421Z
LAST-MODIFIED:20250807T161421Z
UID:2810-1757865600-1757869200@purasyndrome.org
SUMMARY:Young Sibling Meet Up - September 2025
DESCRIPTION:Young siblings\, please join us Sunday\, September 14 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250906T160000
DTEND;TZID=UTC:20250906T170000
DTSTAMP:20260513T170022
CREATED:20250807T150255Z
LAST-MODIFIED:20250807T150255Z
UID:2804-1757174400-1757178000@purasyndrome.org
SUMMARY:Adult Sibling Meet Up - September 2025
DESCRIPTION:Adult siblings\, please join us Saturday\, September 6 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/adult-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250223T160000
DTEND;TZID=UTC:20250223T170000
DTSTAMP:20260513T170022
CREATED:20241223T160205Z
LAST-MODIFIED:20241223T160205Z
UID:2421-1740326400-1740330000@purasyndrome.org
SUMMARY:Young Sibling Meet Up - February 2025
DESCRIPTION:Young siblings\, please join us Sunday\, February 23 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250208T160000
DTEND;TZID=UTC:20250208T170000
DTSTAMP:20260513T170022
CREATED:20241223T155656Z
LAST-MODIFIED:20241223T155656Z
UID:2414-1739030400-1739034000@purasyndrome.org
SUMMARY:Adult Sibling Meet Up - February 2025
DESCRIPTION:Adult siblings\, please join us Saturday\, February 8 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/adult-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241117T190000
DTEND;TZID=America/New_York:20241117T200000
DTSTAMP:20260513T170022
CREATED:20241001T231842Z
LAST-MODIFIED:20241001T231842Z
UID:2229-1731870000-1731873600@purasyndrome.org
SUMMARY:Registry Meet-Up #2: November 17
DESCRIPTION:This meet-up has been scheduled to help families fill in the Global Patient Registry. Please be sure to visit our webpage at purasyndrome.org/registry to ensure your account is set-up prior to the meeting. On that same page is a checklist of items that would be helpful to have gathered prior to the meeting as well. \n\n 
URL:https://purasyndrome.org/event/registry-meet-up-2-november-17/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241102T110000
DTEND;TZID=America/New_York:20241102T120000
DTSTAMP:20260513T170022
CREATED:20241001T231629Z
LAST-MODIFIED:20241001T231716Z
UID:2226-1730545200-1730548800@purasyndrome.org
SUMMARY:Registry Meet-Up #1: November 2
DESCRIPTION:This meet-up has been scheduled to help families fill in the Global Patient Registry. Please be sure to visit our webpage at purasyndrome.org/registry to ensure your account is set-up prior to the meeting. On that same page is a checklist of items that would be helpful to have gathered prior to the meeting as well. \n\n 
URL:https://purasyndrome.org/event/registry-meet-up-1-november-2/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241027T150000
DTEND;TZID=America/New_York:20241027T160000
DTSTAMP:20260513T170022
CREATED:20241002T165755Z
LAST-MODIFIED:20241002T180843Z
UID:2233-1730041200-1730044800@purasyndrome.org
SUMMARY:All are Welcome Meet-Up October 2024
DESCRIPTION:All are welcome for a meet-up of any families that can join us!
URL:https://purasyndrome.org/event/all-are-welcome-meet-up-october-2024/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="PURA Syndrome Foundation":MAILTO:m.vaught@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20241024T210000
DTEND;TZID=Europe/Rome:20241024T220000
DTSTAMP:20260513T170022
CREATED:20241015T154123Z
LAST-MODIFIED:20241015T154123Z
UID:2294-1729803600-1729807200@purasyndrome.org
SUMMARY:Italy Meet-Up October 2024
DESCRIPTION:
URL:https://purasyndrome.org/event/italy-meet-up-october-2024/
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241003T193000
DTEND;TZID=Europe/Helsinki:20241003T203000
DTSTAMP:20260513T170022
CREATED:20240928T020038Z
LAST-MODIFIED:20240928T020038Z
UID:2205-1727983800-1727987400@purasyndrome.org
SUMMARY:Germany Meet Up October 2024
DESCRIPTION:
URL:https://purasyndrome.org/event/germany-meet-up-october-2024/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231212T200000
DTEND;TZID=Europe/Paris:20231212T210000
DTSTAMP:20260513T170022
CREATED:20230601T104754Z
LAST-MODIFIED:20230601T104754Z
UID:1450-1702411200-1702414800@purasyndrome.org
SUMMARY:Meet Up: United Kingdom
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-kingdom-5/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20231203T100000
DTEND;TZID=Europe/Helsinki:20231203T110000
DTSTAMP:20260513T170022
CREATED:20230601T104632Z
LAST-MODIFIED:20230601T104632Z
UID:1446-1701597600-1701601200@purasyndrome.org
SUMMARY:Meet Up: Germany
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-germany-4/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231118T110000
DTEND;TZID=Europe/Paris:20231118T110000
DTSTAMP:20260513T170022
CREATED:20230601T104435Z
LAST-MODIFIED:20230601T104435Z
UID:1444-1700305200-1700305200@purasyndrome.org
SUMMARY:Meet Up: United Kingdom
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-kingdom-4/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20231115T200000
DTEND;TZID=Europe/Helsinki:20231115T210000
DTSTAMP:20260513T170022
CREATED:20230601T104330Z
LAST-MODIFIED:20230601T104330Z
UID:1441-1700078400-1700082000@purasyndrome.org
SUMMARY:Registry Meet Up: France
DESCRIPTION:
URL:https://purasyndrome.org/event/registry-meet-up-france/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231112T160000
DTEND;TZID=America/New_York:20231112T170000
DTSTAMP:20260513T170022
CREATED:20230601T104215Z
LAST-MODIFIED:20230601T104215Z
UID:1439-1699804800-1699808400@purasyndrome.org
SUMMARY:Meet Up: South America
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-south-america/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20231025T193000
DTEND;TZID=Europe/Paris:20231025T203000
DTSTAMP:20260513T170022
CREATED:20230601T104108Z
LAST-MODIFIED:20230601T104108Z
UID:1437-1698262200-1698265800@purasyndrome.org
SUMMARY:Meet Up: United Kingdom
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-kingdom-3/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20231012T193000
DTEND;TZID=Europe/Helsinki:20231012T203000
DTSTAMP:20260513T170022
CREATED:20230601T103757Z
LAST-MODIFIED:20230601T103757Z
UID:1426-1697139000-1697142600@purasyndrome.org
SUMMARY:Meet Up: Germany
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-germany-3/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230923T100000
DTEND;TZID=Europe/Paris:20230923T110000
DTSTAMP:20260513T170022
CREATED:20230601T093749Z
LAST-MODIFIED:20230601T093749Z
UID:1428-1695463200-1695466800@purasyndrome.org
SUMMARY:Meet Up: United Kingdom
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-kingdom-2/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20230909T140000
DTEND;TZID=America/Halifax:20230909T150000
DTSTAMP:20260513T170022
CREATED:20230601T093344Z
LAST-MODIFIED:20230601T093344Z
UID:1424-1694268000-1694271600@purasyndrome.org
SUMMARY:Meet Up: United States
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-states/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="US Ambassador":MAILTO:us@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230819T100000
DTEND;TZID=Europe/Paris:20230819T110000
DTSTAMP:20260513T170022
CREATED:20230601T093005Z
LAST-MODIFIED:20230601T093005Z
UID:1422-1692439200-1692442800@purasyndrome.org
SUMMARY:Registry Meet Up: United Kingdom
DESCRIPTION:
URL:https://purasyndrome.org/event/registry-meet-up-united-kingdom/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20230709T100000
DTEND;TZID=Europe/Helsinki:20230709T110000
DTSTAMP:20260513T170022
CREATED:20230531T130413Z
LAST-MODIFIED:20230531T130413Z
UID:1418-1688896800-1688900400@purasyndrome.org
SUMMARY:Meet Up: Germany
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-germany-2/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230703T190000
DTEND;TZID=Europe/Paris:20230703T200000
DTSTAMP:20260513T170022
CREATED:20230531T130402Z
LAST-MODIFIED:20230531T130402Z
UID:1416-1688410800-1688414400@purasyndrome.org
SUMMARY:Meet Up: United Kingdom
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-kingdom/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230527T100000
DTEND;TZID=UTC:20230527T230000
DTSTAMP:20260513T170022
CREATED:20230225T172045Z
LAST-MODIFIED:20230225T172045Z
UID:792-1685181600-1685228400@purasyndrome.org
SUMMARY:Meet Up: United Kingdom
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-uk-may-2023/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230524T193000
DTEND;TZID=Europe/Paris:20230524T203000
DTSTAMP:20260513T170022
CREATED:20230225T171138Z
LAST-MODIFIED:20230413T201129Z
UID:784-1684956600-1684960200@purasyndrome.org
SUMMARY:Meet Up: Germany
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-germany/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230520T140000
DTEND;TZID=America/New_York:20230520T150000
DTSTAMP:20260513T170022
CREATED:20230225T171739Z
LAST-MODIFIED:20230225T171739Z
UID:790-1684591200-1684594800@purasyndrome.org
SUMMARY:Meet Up: Caring Together
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-caring-together/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230427T180000
DTEND;TZID=America/New_York:20230427T190000
DTSTAMP:20260513T170022
CREATED:20230225T171408Z
LAST-MODIFIED:20230325T020448Z
UID:786-1682618400-1682622000@purasyndrome.org
SUMMARY:Meet Up: United States New Families
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-states-new-families/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="US Ambassador":MAILTO:us@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230322T190000
DTEND;TZID=UTC:20230322T203000
DTSTAMP:20260513T170022
CREATED:20230225T164241Z
LAST-MODIFIED:20230225T164241Z
UID:766-1679511600-1679517000@purasyndrome.org
SUMMARY:Meet Up: United Kingdom Registry Meet Up
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-united-kingdom-registry-meet-up/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="UK Ambassador":MAILTO:uk@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230316T200000
DTEND;TZID=Europe/Paris:20230316T210000
DTSTAMP:20260513T170022
CREATED:20230225T163307Z
LAST-MODIFIED:20230225T163851Z
UID:760-1678996800-1679000400@purasyndrome.org
SUMMARY:Meet-up: France
DESCRIPTION:
URL:https://purasyndrome.org/event/meet-up-france/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
END:VCALENDAR