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X-WR-CALDESC:Events for PURA Syndrome Foundation
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DTSTART;TZID=America/New_York:20261024T150000
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UID:3476-1792854000-1792857600@purasyndrome.org
SUMMARY:All are Welcome Meet-Up October 2026
DESCRIPTION:Let’s celebrate PURA Syndrome Awareness by getting together for a virtual meet up on Saturday\, October 24th at 3:00 pm ET. We can share resources\, connect and get to know some newly diagnosed families. We hope to see as many of you there that can make it! Please email m.vaught@pura-syndrome.org for the Zoom information. Questions? Contact Melissa at m.vaught@pura-syndrome.org
URL:https://purasyndrome.org/event/all-are-welcome-meet-up-october-2026/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="PURA Syndrome Foundation":MAILTO:m.vaught@pura-syndrome.org
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