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X-WR-CALNAME:PURA Syndrome Foundation
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X-WR-CALDESC:Events for PURA Syndrome Foundation
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DTSTART;TZID=UTC:20250208T160000
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CREATED:20241223T155656Z
LAST-MODIFIED:20241223T155656Z
UID:2414-1739030400-1739034000@purasyndrome.org
SUMMARY:Adult Sibling Meet Up - February 2025
DESCRIPTION:Adult siblings\, please join us Saturday\, February 8 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/adult-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250223T160000
DTEND;TZID=UTC:20250223T170000
DTSTAMP:20241223T160205Z
CREATED:20241223T160205Z
LAST-MODIFIED:20241223T160205Z
UID:2421-1740326400-1740330000@purasyndrome.org
SUMMARY:Young Sibling Meet Up - February 2025
DESCRIPTION:Young siblings\, please join us Sunday\, February 23 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250906T160000
DTEND;TZID=UTC:20250906T170000
DTSTAMP:20250807T150255Z
CREATED:20250807T150255Z
LAST-MODIFIED:20250807T150255Z
UID:2804-1757174400-1757178000@purasyndrome.org
SUMMARY:Adult Sibling Meet Up - September 2025
DESCRIPTION:Adult siblings\, please join us Saturday\, September 6 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/adult-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250914T160000
DTEND;TZID=UTC:20250914T170000
DTSTAMP:20250807T161421Z
CREATED:20250807T161421Z
LAST-MODIFIED:20250807T161421Z
UID:2810-1757865600-1757869200@purasyndrome.org
SUMMARY:Young Sibling Meet Up - September 2025
DESCRIPTION:Young siblings\, please join us Sunday\, September 14 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251011T150000
DTEND;TZID=America/New_York:20251011T160000
DTSTAMP:20250904T182810Z
CREATED:20250904T182810Z
LAST-MODIFIED:20250904T182810Z
UID:2821-1760194800-1760198400@purasyndrome.org
SUMMARY:All are Welcome Meet-Up October 2025
DESCRIPTION:All are welcome for a meet-up of any families that can join us! Questions? Contact Melissa at m.vaught@pura-syndrome.org
URL:https://purasyndrome.org/event/all-are-welcome-meet-up-october-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="PURA Syndrome Foundation":MAILTO:m.vaught@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Kolkata:20260301T090000
DTEND;TZID=Asia/Kolkata:20260301T100000
DTSTAMP:20260201T032942Z
CREATED:20260201T032942Z
LAST-MODIFIED:20260201T032942Z
UID:3082-1772355600-1772359200@purasyndrome.org
SUMMARY:First Meet Up for PURA Families in India
DESCRIPTION:The PSF will be hosting a virtual meet-up for any of our families from India on Sunday\, March 1\, at 9:00 am IST. If you would like to join this meet-up please be sure to register here.
URL:https://purasyndrome.org/event/first-meet-up-for-pura-families-in-india/
LOCATION:Virtual
CATEGORIES:Meet-Up
END:VEVENT
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