BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//PURA Syndrome Foundation - ECPv6.16.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:PURA Syndrome Foundation
X-ORIGINAL-URL:https://purasyndrome.org
X-WR-CALDESC:Events for PURA Syndrome Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20230101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20250914T160000
DTEND;TZID=UTC:20250914T170000
DTSTAMP:20260513T202249
CREATED:20250807T161421Z
LAST-MODIFIED:20250807T161421Z
UID:2810-1757865600-1757869200@purasyndrome.org
SUMMARY:Young Sibling Meet Up - September 2025
DESCRIPTION:Young siblings\, please join us Sunday\, September 14 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250913T160000
DTEND;TZID=UTC:20250913T170000
DTSTAMP:20260513T202249
CREATED:20250807T161218Z
LAST-MODIFIED:20250807T161218Z
UID:2808-1757779200-1757782800@purasyndrome.org
SUMMARY:Pre-Teen Sibling Meet Up - September 2025
DESCRIPTION:Pre-teen siblings\, please join us Saturday\, September 13 from 4:00-5:00 pm UTC+0 (UK time) for a pre-teen (ages 9-12) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/pre-teen-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250907T160000
DTEND;TZID=UTC:20250907T170000
DTSTAMP:20260513T202249
CREATED:20250807T150418Z
LAST-MODIFIED:20250807T150418Z
UID:2806-1757260800-1757264400@purasyndrome.org
SUMMARY:Young Adult Sibling Meet Up - September 2025
DESCRIPTION:Young adult siblings\, please join us Sunday\, September 7 from 4:00-5:00 pm UTC+0 (UK time) for a young adult (ages 13-17) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-adult-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250906T160000
DTEND;TZID=UTC:20250906T170000
DTSTAMP:20260513T202249
CREATED:20250807T150255Z
LAST-MODIFIED:20250807T150255Z
UID:2804-1757174400-1757178000@purasyndrome.org
SUMMARY:Adult Sibling Meet Up - September 2025
DESCRIPTION:Adult siblings\, please join us Saturday\, September 6 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/adult-sibling-meet-up-september-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250223T160000
DTEND;TZID=UTC:20250223T170000
DTSTAMP:20260513T202249
CREATED:20241223T160205Z
LAST-MODIFIED:20241223T160205Z
UID:2421-1740326400-1740330000@purasyndrome.org
SUMMARY:Young Sibling Meet Up - February 2025
DESCRIPTION:Young siblings\, please join us Sunday\, February 23 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250222T160000
DTEND;TZID=UTC:20250222T170000
DTSTAMP:20260513T202249
CREATED:20241223T160029Z
LAST-MODIFIED:20241223T160029Z
UID:2418-1740240000-1740243600@purasyndrome.org
SUMMARY:Pre-Teen Sibling Meet Up - February 2025
DESCRIPTION:Pre-teen siblings\, please join us Saturday\, February 22 from 4:00-5:00 pm UTC+0 (UK time) for a pre-teen (ages 9-12) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/pre-teen-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250209T160000
DTEND;TZID=UTC:20250209T170000
DTSTAMP:20260513T202249
CREATED:20241223T155847Z
LAST-MODIFIED:20241223T160048Z
UID:2416-1739116800-1739120400@purasyndrome.org
SUMMARY:Young Adult Sibling Meet Up - February 2025
DESCRIPTION:Young adult siblings\, please join us Sunday\, February 9 from 4:00-5:00 pm UTC+0 (UK time) for a young adult (ages 13-17) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-adult-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250208T160000
DTEND;TZID=UTC:20250208T170000
DTSTAMP:20260513T202249
CREATED:20241223T155656Z
LAST-MODIFIED:20241223T155656Z
UID:2414-1739030400-1739034000@purasyndrome.org
SUMMARY:Adult Sibling Meet Up - February 2025
DESCRIPTION:Adult siblings\, please join us Saturday\, February 8 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/adult-sibling-meet-up-february-2025/
LOCATION:Virtual
CATEGORIES:Meet-Up,Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241103T160000
DTEND;TZID=UTC:20241103T170000
DTSTAMP:20260513T202249
CREATED:20240901T212301Z
LAST-MODIFIED:20240901T212413Z
UID:2183-1730649600-1730653200@purasyndrome.org
SUMMARY:Young Sibling Meet Up - November 2024
DESCRIPTION:Young siblings\, please join us Sunday\, November 3 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-sibling-meet-up-november-2024/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241013T160000
DTEND;TZID=UTC:20241013T170000
DTSTAMP:20260513T202249
CREATED:20240901T212143Z
LAST-MODIFIED:20240901T212426Z
UID:2181-1728835200-1728838800@purasyndrome.org
SUMMARY:Pre-Teen Sibling Meet Up - October 2024
DESCRIPTION:Pre-teen siblings\, please join us Sunday\, October 13 from 4:00-5:00 pm UTC+0 (UK time) for our first pre-teen (ages 9-12) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/pre-teen-sibling-meet-up-october-2024/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241006T160000
DTEND;TZID=UTC:20241006T170000
DTSTAMP:20260513T202249
CREATED:20240901T211921Z
LAST-MODIFIED:20240901T212438Z
UID:2178-1728230400-1728234000@purasyndrome.org
SUMMARY:Young Adult Sibling Meet Up - October 2024
DESCRIPTION:Young adult siblings\, please join us Sunday\, October 6 from 4:00-5:00 pm UTC+0 (UK time) for our first young adult (ages 13-17) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/young-adult-sibling-meet-up-october-2024/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240929T160000
DTEND;TZID=UTC:20240929T170000
DTSTAMP:20260513T202249
CREATED:20240901T211557Z
LAST-MODIFIED:20240901T212449Z
UID:2176-1727625600-1727629200@purasyndrome.org
SUMMARY:Adult Sibling Meet Up - September 2024
DESCRIPTION:Adult siblings\, please join us Sunday\, September 29 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nQuestions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org \nPlease continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/adult-sibling-meet-up-september-2024/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240413T160000
DTEND;TZID=UTC:20240413T170000
DTSTAMP:20260513T202249
CREATED:20240314T132806Z
LAST-MODIFIED:20240322T203930Z
UID:1726-1713024000-1713027600@purasyndrome.org
SUMMARY:NEW! Adult Sibling Meet Up
DESCRIPTION:Adult siblings\, please join us Saturday\, April 13 (NEW DATE) from 4:00-5:00 pm UTC+0 (UK time) for our first sibling meet up! If you haven’t yet signed up for our sibling email list\, please click here. For more sibling information and resources\, click here. \nWe are beginning to offer PURA Sibling meet ups\, beginning with our adult sibling population.  Younger age group meet ups will follow\, please continue to check back as we will be periodically adding more resources and regular meet ups to the calendar on our Siblings Outreach page.
URL:https://purasyndrome.org/event/new-adult-sibling-meet-up/
LOCATION:Virtual
CATEGORIES:Siblings
ORGANIZER;CN="Siblings Ambassador":MAILTO:siblings@pura-syndrome.org
END:VEVENT
END:VCALENDAR