BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//PURA Syndrome Foundation - ECPv6.18.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:PURA Syndrome Foundation
X-ORIGINAL-URL:https://purasyndrome.org
X-WR-CALDESC:Events for PURA Syndrome Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20260308T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20261101T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20270314T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20271107T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20260308T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20261101T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20270314T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20271107T090000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20280312T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20281105T090000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261011T140000
DTEND;TZID=America/Chicago:20261011T150000
DTSTAMP:20260925T021900Z
CREATED:20260925T021900Z
LAST-MODIFIED:20260925T021900Z
UID:3403-1791727200-1791730800@purasyndrome.org
SUMMARY:Grandpops Meet-up - October 2026
DESCRIPTION:PURA Grandparents mark your calendars! On October 11 at 2 pm CST\, we will host a virtual GrandPOPS Meetup. Join us on Zoom to share our stories\, photos\, joys\, and concerns. If your special grandchild is available\, we would love to them\, but we welcome photos too. Sign-up for our GrandPops email list here. Questions? Email grandpops@pura-syndrome.org.
URL:https://purasyndrome.org/event/grandpops-meet-up-october-2026/
LOCATION:Virtual
CATEGORIES:Grandparents
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261024T150000
DTEND;TZID=America/New_York:20261024T160000
DTSTAMP:20261014T165046Z
CREATED:20261014T163814Z
LAST-MODIFIED:20261014T165046Z
UID:3476-1792854000-1792857600@purasyndrome.org
SUMMARY:All are Welcome Meet-Up October 2026
DESCRIPTION:Let’s celebrate PURA Syndrome Awareness by getting together for a virtual meet up on Saturday\, October 24th at 3:00 pm ET. We can share resources\, connect and get to know some newly diagnosed families. We hope to see as many of you there that can make it! Please email m.vaught@pura-syndrome.org for the Zoom information. Questions? Contact Melissa at m.vaught@pura-syndrome.org
URL:https://purasyndrome.org/event/all-are-welcome-meet-up-october-2026/
LOCATION:Virtual
CATEGORIES:Meet-Up
ORGANIZER;CN="PURA Syndrome Foundation":MAILTO:m.vaught@pura-syndrome.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20270625T170000
DTEND;TZID=America/Los_Angeles:20270627T120000
DTSTAMP:20261014T164609Z
CREATED:20261014T164122Z
LAST-MODIFIED:20261014T164609Z
UID:3479-1813942800-1814097600@purasyndrome.org
SUMMARY:2027 PURA Syndrome Conference
DESCRIPTION:2027 PURA Syndrome Conference\nSave the Dates: June 25-27\, 2027 in San Diego\, California\, USA
URL:https://purasyndrome.org/event/2027-pura-syndrome-conference/
LOCATION:Bahia Resort Hotel\, 998 West Mission Bay Drive\, San Diego\, CA\, 92109\, United States
CATEGORIES:Conference
ORGANIZER;CN="PURA Syndrome Foundation":MAILTO:m.vaught@pura-syndrome.org
END:VEVENT
END:VCALENDAR