First Grandpops Meet-up
2025-09-27 13:00 - 14:00 (America/New_York) | Virtual
Join us for our first Grandpops Meet-up! Check out our website at purasyndrome.org/grandpops and sign up for our email list here.

All are Welcome Meet-Up October 2025
2025-10-11 15:00 - 16:00 (America/New_York) | Virtual
All are welcome for a meet-up of any families that can join us! Questions? Contact Melissa at m.vaught@pura-syndrome.org

Grandpops Meet-up - February 2026
2026-02-28 13:00 - 14:00 (America/Chicago) | Virtual
PURA Grandparents mark your calendars! On February 28 at 1 pm CST, we will host a virtual GrandPOPS Meetup. Join us on Zoom to share our stories, photos, joys, and concerns. If your special grandchild is available, we would love to them, but we welcome photos too. Sign-up for our GrandPops email list here. Questions? Email grandpops@pura-syndrome.org.

First Meet Up for PURA Families in India
2026-03-01 09:00 - 10:00 (Asia/Kolkata) | Virtual
The PSF will be hosting a virtual meet-up for any of our families from India on Sunday, March 1, at 9:00 am IST. If you would like to join this meet-up please be sure to register here.

2026 PURA Syndrome Conference
2026-06-26 17:00 - 2026-06-28 12:00 (Europe/Helsinki) | Holiday Inn Munich – City Centre, Holiday Inn Munich - City Centre Hochstraße 3,, Munich, 81669, Germany
