We envision this section of the website will have country by country resources and state by state resources for those living in the United States along with other helpful materials for our PURA families. Keep checking back as we will continue to add these items.

About PURA

Looking for a simple way to describe PURA Syndrome to your family or friends? Use these graphics as a starting point.

NEW! Self-Care for Caregivers

The PURA Syndrome Foundation partnered with Shahroo Izadi to create self-care resources for our PURA caregiver community. Click here to access these resources that can be used in the comfort of your own home!

More coming soon!

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