There are many opportunities to help out…

The PURA Syndrome Foundation is a volunteer based organization. With that comes the need to recruit many hands to accomplish our mission and the goals we set forth as an organization. Here are a few of the areas we are looking for assistance:

  • Annual Conference
    • Planning
    • Marketing and Communication leading up to the conference
    • Social Media during the conference
  • Sibling Meet Ups
    • We are looking for a PURA sibling to lead a virtual sibling meet up at least two times a year.
  • Social Media for the PURA Syndrome Foundation
  • ¬†Resources
    • We would like to build a country specific database of resources accessible to families that will assist in all walks of life.
    • We would like to provide families with materials that can help support them while raising a child with special needs. These can be books, movies, blogs, etc.

Please consider helping out if you are able to do so, or if there is someone in your life you think may be able to help ask them to fill out the form below or reach out to communications@pura-syndrome.org.

Can you help?

We are always looking for volunteers to help us carry out our mission. If you think you can help in any way, please fill out the form below or contact  info@pura-syndrome.org.

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