Self-Care for Caregivers

The PURA Syndrome Foundation partnered with Shahroo Izadi to create self-care resources for our PURA caregiver community. Click below to access these resources that can be used in the comfort of your own home!

The Oxygen Mask Project

As caregivers, it is so easy to not only get physically worn down, but mentally worn down as well. The worry alone can wreck havoc on our bodies, much less the stress that comes with our struggles to find proper care, treatments, equipment and so much more for our PURA loved ones.

Our mental health is so important, and not all of us have the time or resources to seek outside help. Thus, the PURA Foundation partnered with Behavioral Change Specialist and author of The Kindness Method Shahroo Izadi to create self-care resources for our PURA caregiver community that one can do in the comfort of their own home!

Shahroo began by surveying our parents (which received an overwhelming response!) and from those responses, created resources for our PURA caregiver community. We wanted to provide different types of formats for those of you who might like to sit down and read/write (workbook pdfs) or for those of you who may only have time to listen (audio files) while doing a myriad of other things.

We hope you enjoy this, as this is just the beginning of providing our community with materials to help along their caregiving journey. If you have any comments, feedback, or ideas for future resources, please contact


Click the images below to access the self-care workbooks in PDF format. In each workbook, Shahroo provides an introduction as well as guidance on how to complete them. These workbooks are downloadable, printable, and can be pasted into Word if you’d like to complete it on the computer. Shahroo recommends completing the exercises in a separate self-care notebook so that you feel free to write more for the sections that really resonate with you.

Workbook 1: Foundations of Self-Care

Workbook 2: Lifelong Self-Care

Audio Files

Don’t have time to complete a workbook at the moment? Start here. Shahroo created audio files on some of the key topics our parents expressed concern about. Click the Audio files below and listen to her guidance as you go about your day.

Foundations of Self-Care

Lifelong Self-Care

Copyright (c) 2024 Shahroo Izadi. All rights reserved. The Kindness Method. Created as a resource for PURA Syndrome Foundation.

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