Name: Registry Meet-Up #2: November 17
Start: 2024-11-17T19:00:00-05:00
End: 2024-11-17T20:00:00-05:00
Location: Virtual

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3:00 pm

October 27 @ 3:00 pm - 4:00 pm EDT

All are Welcome Meet-Up October 2024

Virtual

All are welcome for a meet-up of any families that can join us!

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The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis, management, and health. Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

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