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10:30 am

July 17 @ 10:30 am - 11:30 am EDT

Together for PURA Kickoff Meeting 1

Virtual

Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]

7:00 pm

July 17 @ 7:00 pm - 8:00 pm EDT

Together for PURA Kickoff Meeting 2

Virtual

Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]

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The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis, management, and health. Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

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