[email protected]

Facebook
Instagram

Facebook
Instagram

JOIN US
DONATE

Understanding PURA Syndrome
For Families
Research
Make an Impact
News & Events
About Us

Select Page

Loading view.

Fundraiser

Events
Fundraiser

Events Search and Views Navigation

Enter Keyword. Search for Events by Keyword.

Event Views Navigation

List
Month
Day

Select date.

10:30 am

July 17 @ 10:30 am - 11:30 am EDT

Together for PURA Kickoff Meeting 1

Virtual

Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]

7:00 pm

July 17 @ 7:00 pm - 8:00 pm EDT

Together for PURA Kickoff Meeting 2

Virtual

Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]

Previous Day
Next Day

Google Calendar
iCalendar
Outlook 365
Outlook Live
Export .ics file
Export Outlook .ics file

PUBMED database search

The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis, management, and health. Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

Search

Facebook
Instagram

©2023 PURA SYNDROME FOUNDATION

Skip to content

Accessibility Tools

Increase Text
Decrease Text
Grayscale
High Contrast
Negative Contrast
Light Background
Links Underline
Readable Font
Reset