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Understanding PURA Syndrome
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Understanding PURA Syndrome
PURA 101
FAQ
Glossary of Terms
For Families
Newly Diagnosed
Clinician Network
PURA Family Support
Self-Care for Caregivers
Sibling Outreach
Ambassador Program
Resources
Research
Published Research
Open Research Projects
Scientific Advisor & Advisory Board
PURA Researchers
Global Patient Registry
Biobank
Make an Impact
PURA Awareness
Volunteer
Donate
Fundraising
Together for PURA 2024-25
Shop
News & Events
Annual Conference
Newsletter & Updates
Event Calendar
Blog
About Us
Mission and Values
Our Team
JOIN US
DONATE
12 events found.
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3/22/2023
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March 2023
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22
March 22, 2023 @ 7:00 pm
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8:30 pm
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Meet Up: United Kingdom Registry Meet Up
Virtual
April 2023
Thu
27
April 27, 2023 @ 6:00 pm
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7:00 pm
UTC-5
Meet Up: United States New Families
Virtual
May 2023
Sat
20
May 20, 2023 @ 2:00 pm
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3:00 pm
UTC-5
Meet Up: Caring Together
Virtual
Wed
24
May 24, 2023 @ 7:30 pm
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8:30 pm
UTC+1
Meet Up: Germany
Virtual
Sat
27
May 27, 2023 @ 10:00 am
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11:00 pm
UTC+0
Meet Up: United Kingdom
Virtual
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3
July 3, 2023 @ 7:00 pm
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8:00 pm
UTC+1
Meet Up: United Kingdom
Virtual
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9
July 9, 2023 @ 10:00 am
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11:00 am
UTC+2
Meet Up: Germany
Virtual
August 2023
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19
August 19, 2023 @ 10:00 am
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11:00 am
UTC+1
Registry Meet Up: United Kingdom
Virtual
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9
September 9, 2023 @ 2:00 pm
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3:00 pm
UTC-4
Meet Up: United States
Virtual
Sat
23
September 23, 2023 @ 10:00 am
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11:00 am
UTC+1
Meet Up: United Kingdom
Virtual
October 2023
Thu
12
October 12, 2023 @ 7:30 pm
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8:30 pm
UTC+2
Meet Up: Germany
Virtual
Wed
25
October 25, 2023 @ 7:30 pm
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8:30 pm
UTC+1
Meet Up: United Kingdom
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