We’d like to take a moment to express our gratitude to Jennifer Bierling, who is stepping down from our board. She has been a wonderful team member and was instrumental in the launch of our Global Patient Registry last year. Her hard work helped the project get off the ground and we are very grateful for that and her many other contributions throughout the years. Thank you for everything, Jen, you will be missed!

With Jen’s absence opens the Secretary position on our board, so if someone you know may be willing to fill this role, please visit our website at www.purasyndrome.org to read the duties of the Secretary and how to apply.

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