by PURA Syndrome Foundation | Sep 24, 2024 | Siblings
Attention PURA Siblings! You are invited to join us for zoom chats over the next month so we can get to know one another. Please keep an eye our your email for zoom links and if you aren’t yet signed up for our email list, visit purasyndrome.org/siblings to do so....
by PURA Syndrome Foundation | Mar 14, 2024 | Siblings
We are pleased to announce the launch of our PURA sibling outreach offerings! Our Siblings Ambassador, Chrissie Brock, has been hard at work putting together these initial offerings and has many ideas on how to expand them going forward. Our goal is to offer a variety...
