by PURA Syndrome Foundation | Mar 9, 2026 | Annual Conference
This year’s conference will be special in so many ways. One way you can participate is to feature your PURAPerfect Child or your PURAPerfect Relative in the conference program and online! We are now offering families and friends the ability to purchase program...
by PURA Syndrome Foundation | Dec 31, 2025 | Annual Conference, News
Register now for the PURA Syndrome Conference, an event taking place June 26-28, 2026. Join researchers, experts and our PURA community for in-depth sessions that will focus on: Research and studies about PURA Parent Discussions PURA Community Social Time And so much...
by PURA Syndrome Foundation | Jun 29, 2025 | Annual Conference, News, Newsletter
What an unforgettable gathering! Our 2025 PURA Syndrome Conference in Dallas, Texas, USA, brought together a record-breaking 171 in-person participants, including 36 PURA Perfect individuals, along with 82 virtual attendees from around the world. For three incredible...
by PURA Syndrome Foundation | Jun 20, 2025 | Annual Conference
IN-PERSON ATTENDEES We look forward to seeing you next week in Dallas for the 2025 PURA Syndrome Conference, June 27-29! This is an exciting time for us to be together to learn, network and be part of the PURA Syndrome Community. We wanted to provide a few additional...
by PURA Syndrome Foundation | May 10, 2025 | Annual Conference
Save the dates! We are excited to announce that our 2026 PURA Syndrome Conference will take place June 26-28, 2026 in Munich, Germany . More info to come after our 2025 Conference this June in Dallas, TX, USA. We want to offer a special thank you to Tina & Dierk...
by PURA Syndrome Foundation | Mar 7, 2025 | Annual Conference
Hear from the Manning family who attended last year’s PURA Syndrome Conference and why it was such a meaningful experience for them! Save the date for the 2025 PURA Syndrome Conference! June 27-29, 2025 in Dallas, TX Register at puraconference.org #PURASyndrome...
