by PURA Syndrome Foundation | Dec 31, 2025 | Annual Conference, News
Register now for the PURA Syndrome Conference, an event taking place June 26-28, 2026. Join researchers, experts and our PURA community for in-depth sessions that will focus on: Research and studies about PURA Parent Discussions PURA Community Social Time And so much...
by PURA Syndrome Foundation | Jun 29, 2025 | Annual Conference, News, Newsletter
What an unforgettable gathering! Our 2025 PURA Syndrome Conference in Dallas, Texas, USA, brought together a record-breaking 171 in-person participants, including 36 PURA Perfect individuals, along with 82 virtual attendees from around the world. For three incredible...
by PURA Syndrome Foundation | Jun 20, 2025 | Annual Conference
IN-PERSON ATTENDEES We look forward to seeing you next week in Dallas for the 2025 PURA Syndrome Conference, June 27-29! This is an exciting time for us to be together to learn, network and be part of the PURA Syndrome Community. We wanted to provide a few additional...
by PURA Syndrome Foundation | May 10, 2025 | Annual Conference
Save the dates! We are excited to announce that our 2026 PURA Syndrome Conference will take place June 26-28, 2026 in Munich, Germany . More info to come after our 2025 Conference this June in Dallas, TX, USA. We want to offer a special thank you to Tina & Dierk...
by PURA Syndrome Foundation | Mar 7, 2025 | Annual Conference
Hear from the Manning family who attended last year’s PURA Syndrome Conference and why it was such a meaningful experience for them! Save the date for the 2025 PURA Syndrome Conference! June 27-29, 2025 in Dallas, TX Register at puraconference.org #PURASyndrome...
by PURA Syndrome Foundation | Feb 26, 2025 | Annual Conference
Hear from the Stafford family who attended last year’s PURA Syndrome Conference and why it was such a meaningful experience for them. From expert talks to heartfelt connections, this event is designed to inform, support, and bring our community together. Stafford...
