All are Welcome Meet-Up October 2026
October 24 @ 3:00 pm - 4:00 pm EDT
Let’s celebrate PURA Syndrome Awareness by getting together for a virtual meet up on Saturday, October 24th at 3:00 pm ET. We can share resources, connect and get to know some newly diagnosed families. We hope to see as many of you there that can make it! Please email m.vaught@pura-syndrome.org for the Zoom information. Questions? Contact Melissa at m.vaught@pura-syndrome.org