First Meet Up for PURA Families in India
VirtualThe PSF will be hosting a virtual meet-up for any of our families from India on Sunday, March 1, at 9:00 am IST. If you would like to join this […]
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Meet-Up
Latest Past Events
All are Welcome Meet-Up October 2025
VirtualAll are welcome for a meet-up of any families that can join us! Questions? Contact Melissa at m.vaught@pura-syndrome.org
Young Sibling Meet Up – September 2025
VirtualYoung siblings, please join us Sunday, September 14 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven't yet signed up for […]