info@pura-syndrome.org
Facebook
Instagram
Facebook
Instagram
JOIN US
DONATE
Understanding PURA Syndrome
PURA 101
FAQ
Glossary of Terms
For Families
Newly Diagnosed
Clinician Network
PURA Family Support
Grandparent Outreach
Self-Care for Caregivers
Sibling Outreach
Ambassador Program
Resources
Research
Published Research
Research Tools
Request for Proposal (RFP)
Open Research Projects
Scientific Advisory Board
PURA Researchers
Global Patient Registry
Biobank
Research Landscape Analysis (2025)
Make an Impact
PURA Awareness
Volunteer
Donate
Fundraising
Together for PURA 2024-25
Shop
News & Events
Annual Conference
Newsletter & Updates
Event Calendar
Blog
About Us
Mission and Values
Our Team
Select Page
« All Events
This event has passed.
Meet Up: Caring Together
May 20, 2023 @ 2:00 pm
-
3:00 pm
UTC-5
«
Meet Up: United States New Families
Meet Up: Germany
»
Add to calendar
Google Calendar
iCalendar
Outlook 365
Outlook Live
Details
Date:
May 20, 2023
Time:
2:00 pm - 3:00 pm
UTC-5
Event Category:
Meet-Up
Venue
Virtual
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset
