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Registry Meet-Up #1: November 2

November 2 @ 11:00 am - 12:00 pm EDT

This meet-up has been scheduled to help families fill in the Global Patient Registry. Please be sure to visit our webpage at purasyndrome.org/registry to ensure your account is set-up prior to the meeting. On that same page is a checklist of items that would be helpful to have gathered prior to the meeting as well.

 

Details

Date:
November 2
Time:
11:00 am - 12:00 pm EDT
Event Category:
Website:
purasyndrome.org/registry

Venue

Virtual
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