[email protected]
Facebook
Instagram
Facebook
Instagram
JOIN US
DONATE
Understanding PURA Syndrome
PURA 101
FAQ
Glossary of Terms
For Families
Newly Diagnosed
PURA Family Support
Sibling Outreach
Ambassador Program
Resources
Clinician Network
Self-Care for Caregivers
Sibling Resources
Research
Published Research
Biobank
Global Patient Registry
Global Research Network (GRN)
Make an Impact
PURA Awareness
Volunteer
Donate
Fundraising
Together for PURA 2024
Shop
News & Events
Annual Conference
Newsletter & Updates
Event Calendar
Blog
About Us
Mission and Values
Our Team
Our Researchers
Select Page
Loading view.
Meet-Up
Events
Meet-Up
Events Search and Views Navigation
Search
Enter Keyword. Search for Events by Keyword.
Find Events
Event Views Navigation
List
List
Month
Day
Today
8/16/2023
August 16, 2023
-
10/24/2024
October 24
Select date.
August 2023
Sat
19
August 19, 2023 @ 10:00 am
-
11:00 am
UTC+1
Registry Meet Up: United Kingdom
Virtual
September 2023
Sat
9
September 9, 2023 @ 2:00 pm
-
3:00 pm
UTC-4
Meet Up: United States
Virtual
Sat
23
September 23, 2023 @ 10:00 am
-
11:00 am
UTC+1
Meet Up: United Kingdom
Virtual
October 2023
Thu
12
October 12, 2023 @ 7:30 pm
-
8:30 pm
UTC+2
Meet Up: Germany
Virtual
Wed
25
October 25, 2023 @ 7:30 pm
-
8:30 pm
UTC+1
Meet Up: United Kingdom
Virtual
November 2023
Sun
12
November 12, 2023 @ 4:00 pm
-
5:00 pm
UTC-5
Meet Up: South America
Virtual
Wed
15
November 15, 2023 @ 8:00 pm
-
9:00 pm
UTC+2
Registry Meet Up: France
Virtual
Sat
18
November 18, 2023 @ 11:00 am
UTC+1
Meet Up: United Kingdom
Virtual
December 2023
Sun
3
December 3, 2023 @ 10:00 am
-
11:00 am
UTC+2
Meet Up: Germany
Virtual
Tue
12
December 12, 2023 @ 8:00 pm
-
9:00 pm
UTC+1
Meet Up: United Kingdom
Virtual
October 2024
Thu
3
October 3 @ 7:30 pm
-
8:30 pm
UTC+2
Germany Meet Up October 2024
Virtual
Thu
24
October 24 @ 9:00 pm
-
10:00 pm
CEST
Italy Meet-Up October 2024
Previous
Events
Today
Next
Events
Subscribe to calendar
Google Calendar
iCalendar
Outlook 365
Outlook Live
Export .ics file
Export Outlook .ics file
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset