All are Welcome Meet-Up October 2025
All are welcome for a meet-up of any families that can join us! Questions? Contact Melissa at m.vaught@pura-syndrome.org
3 events found.
Meet-Up
Events
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Virtual
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First Meet Up for PURA Families in India
VirtualThe PSF will be hosting a virtual meet-up for any of our families from India on Sunday, March 1, at 9:00 am IST. If you would like to join this meet-up please be sure to register here.
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All are Welcome Meet-Up October 2026
VirtualLet’s celebrate PURA Syndrome Awareness by getting together for a virtual meet up on Saturday, October 24th at 3:00 pm ET. We can share resources, connect and get to know […]