12 events found.
Events
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Virtual
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Meet Up: United Kingdom
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Meet Up: Germany
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Meet Up: United Kingdom
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Meet Up: South America
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Meet Up: Germany
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Meet Up: United Kingdom
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NEW! Adult Sibling Meet Up
VirtualAdult siblings, please join us Saturday, April 13 (NEW DATE) from 4:00-5:00 pm UTC+0 (UK time) for our first sibling meet up! If you haven't yet signed up for our sibling email list, please click here. For more sibling information and resources, click here. We are beginning to offer PURA Sibling meet ups, beginning with […]
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2024 PURA Syndrome Conference
For more information, go to www.puraconference.org
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Together for PURA Kickoff Meeting 1
VirtualWouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]