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2026 PURA Syndrome Conference

Holiday Inn Munich - City Centre Holiday Inn Munich - City Centre Hochstraße 3,, Munich

First Meet Up for PURA Families in India

Virtual

The PSF will be hosting a virtual meet-up for any of our families from India on Sunday, March 1, at 9:00 am IST. If you would like to join this […]

Grandpops Meet-up – February 2026

Virtual

PURA Grandparents mark your calendars! On February 28 at 1 pm CST, we will host a virtual GrandPOPS Meetup. Join us on Zoom to share our stories, photos, joys, and concerns. If […]