Name: 2024 PURA Syndrome Conference
Start: 2024-06-21T16:00:00-05:00
End: 2024-06-23T13:00:00-05:00

August 2023
Registry Meet Up: United Kingdom

August 19, 2023 @ 10:00 am - 11:00 am UTC+1

Virtual
September 2023
Meet Up: United States

September 9, 2023 @ 2:00 pm - 3:00 pm UTC-4

Virtual
Meet Up: United Kingdom

September 23, 2023 @ 10:00 am - 11:00 am UTC+1

Virtual
October 2023
Meet Up: Germany

October 12, 2023 @ 7:30 pm - 8:30 pm UTC+2

Virtual
Meet Up: United Kingdom

October 25, 2023 @ 7:30 pm - 8:30 pm UTC+1

Virtual
November 2023
Meet Up: South America

November 12, 2023 @ 4:00 pm - 5:00 pm UTC-5

Virtual
Registry Meet Up: France

November 15, 2023 @ 8:00 pm - 9:00 pm UTC+2

Virtual
Meet Up: United Kingdom

November 18, 2023 @ 11:00 am UTC+1

Virtual
December 2023
Meet Up: Germany

December 3, 2023 @ 10:00 am - 11:00 am UTC+2

Virtual
Meet Up: United Kingdom

December 12, 2023 @ 8:00 pm - 9:00 pm UTC+1

Virtual
April 2024
NEW! Adult Sibling Meet Up

April 13, 2024 @ 4:00 pm - 5:00 pm UTC+0

Virtual

Adult siblings, please join us Saturday, April 13 (NEW DATE) from 4:00-5:00 pm UTC+0 (UK time) for our first sibling meet up! If you haven't yet signed up for our […]
June 2024
2024 PURA Syndrome Conference

June 21, 2024 @ 4:00 pm - June 23, 2024 @ 1:00 pm CDT

For more information, go to www.puraconference.org