Name: Together for PURA Kickoff Meeting 1
Start: 2024-07-17T10:30:00-04:00
End: 2024-07-17T11:30:00-04:00
Location: Virtual

September 2023
Meet Up: United States

September 9, 2023 @ 2:00 pm - 3:00 pm UTC-4

Virtual
Meet Up: United Kingdom

September 23, 2023 @ 10:00 am - 11:00 am UTC+1

Virtual
October 2023
Meet Up: Germany

October 12, 2023 @ 7:30 pm - 8:30 pm UTC+2

Virtual
Meet Up: United Kingdom

October 25, 2023 @ 7:30 pm - 8:30 pm UTC+1

Virtual
November 2023
Meet Up: South America

November 12, 2023 @ 4:00 pm - 5:00 pm UTC-5

Virtual
Registry Meet Up: France

November 15, 2023 @ 8:00 pm - 9:00 pm UTC+2

Virtual
Meet Up: United Kingdom

November 18, 2023 @ 11:00 am UTC+1

Virtual
December 2023
Meet Up: Germany

December 3, 2023 @ 10:00 am - 11:00 am UTC+2

Virtual
Meet Up: United Kingdom

December 12, 2023 @ 8:00 pm - 9:00 pm UTC+1

Virtual
April 2024
NEW! Adult Sibling Meet Up

April 13, 2024 @ 4:00 pm - 5:00 pm UTC+0

Virtual

Adult siblings, please join us Saturday, April 13 (NEW DATE) from 4:00-5:00 pm UTC+0 (UK time) for our first sibling meet up! If you haven't yet signed up for our […]
June 2024
2024 PURA Syndrome Conference

June 21, 2024 @ 4:00 pm - June 23, 2024 @ 1:00 pm CDT

For more information, go to www.puraconference.org
July 2024
Together for PURA Kickoff Meeting 1

July 17, 2024 @ 10:30 am - 11:30 am EDT

Virtual

Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]