[email protected]

Facebook
Instagram

Facebook
Instagram

JOIN US
DONATE

Understanding PURA Syndrome
For Families
Research
Make an Impact
News & Events
About Us

Select Page

Day 4: Stay Informed

by PURA Syndrome Foundation | Oct 13, 2024 | Awareness, News

Sign up for our email list

Follow us on Facebook

Follow us on Instagram

Follow us on YouTube

Search

Advocacy (1)
Annual Conference (29)
Awareness (16)
News (51)
Newsletter (10)
Research (12)
Resources (2)
Siblings (2)
Stories (5)
Together for PURA 2024 (4)
Uncategorized (1)

Recent Posts

Today is PURA Syndrome Awareness Day and our 10th Anniversary!
Remember our PURA Angels
Two Days Away!
Day 10: Share Your Story!
Day 9: Wear Blue on PURA Awareness Day!

PUBMED database search

The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis, management, and health. Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

Search

Facebook
Instagram

©2023 PURA SYNDROME FOUNDATION

Skip to content

Accessibility Tools

Increase Text
Decrease Text
Grayscale
High Contrast
Negative Contrast
Light Background
Links Underline
Readable Font
Reset