by PURA Syndrome Foundation | Apr 29, 2025 | Advocacy, News
U.S. Families and Friends of PURA, please take a moment to ask your elected officials to support and cosponsor the National Plan for Epilepsy! If your elected official is already a sponsor, you will be able to send them a thank-you message instead. Use VoterVoice to...
by PURA Syndrome Foundation | Oct 6, 2024 | Advocacy
Epilepsies Action Network brings together parents, siblings, caregivers, and advocates in partnership with doctors, nurses, researchers, and policy makers to raise awareness and increase funding for The Epilepsies to improve the lives of all persons living with this...
