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Hear from the Stafford family who attended last year’s PURA Syndrome Conference and why it was such a meaningful experience for them. 💙 From expert talks to heartfelt connections, this event is designed to inform, support, and bring our community together.

Stafford family post by Celena Lozano

📅 Save the date for the 2025 PURA Syndrome Conference!
June 27-29, 2025 in Dallas, TX
Register at puraconference.org