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Meet-Up
Meet Up: Germany
VirtualMeet Up: United Kingdom
VirtualMeet Up: South America
VirtualRegistry Meet Up: France
VirtualMeet Up: United Kingdom
VirtualMeet Up: Germany
VirtualMeet Up: United Kingdom
VirtualGermany Meet Up October 2024
VirtualAll are Welcome Meet-Up October 2024
VirtualAll are welcome for a meet-up of any families that can join us!
Registry Meet-Up #1: November 2
VirtualThis meet-up has been scheduled to help families fill in the Global Patient Registry. Please be sure to visit our webpage at purasyndrome.org/registry to ensure your account is set-up prior […]