Calendar of Events
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Young Adult Sibling Meet Up – October 2024
Young Adult Sibling Meet Up – October 2024
Young adult siblings, please join us Sunday, October 6 from 4:00-5:00 pm UTC+0 (UK time) for our first young adult (ages 13-17) sibling meet up! If you haven't yet signed up for our sibling email list, please click here. For more sibling information and resources, click here. Questions? Contact our Sibling Ambassador Chrissie Brock at […]
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Pre-Teen Sibling Meet Up – October 2024
Pre-Teen Sibling Meet Up – October 2024
Pre-teen siblings, please join us Sunday, October 13 from 4:00-5:00 pm UTC+0 (UK time) for our first pre-teen (ages 9-12) sibling meet up! If you haven't yet signed up for our sibling email list, please click here. For more sibling information and resources, click here. Questions? Contact our Sibling Ambassador Chrissie Brock at siblings@pura-syndrome.org Please […]
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All are Welcome Meet-Up October 2024
All are Welcome Meet-Up October 2024
All are welcome for a meet-up of any families that can join us!