12 events found.
Meet Up: United Kingdom
VirtualMeet Up: Germany
VirtualMeet Up: United Kingdom
VirtualMeet Up: South America
VirtualRegistry Meet Up: France
VirtualMeet Up: United Kingdom
VirtualMeet Up: Germany
VirtualMeet Up: United Kingdom
VirtualNEW! Adult Sibling Meet Up
VirtualAdult siblings, please join us Saturday, April 13 (NEW DATE) from 4:00-5:00 pm UTC+0 (UK time) for our first sibling meet up! If you haven't yet signed up for our […]
2024 PURA Syndrome Conference
For more information, go to www.puraconference.org
Together for PURA Kickoff Meeting 1
VirtualWouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]