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NEW! Adult Sibling Meet Up

Virtual

Adult siblings, please join us Saturday, April 13 (NEW DATE) from 4:00-5:00 pm UTC+0 (UK time) for our first sibling meet up! If you haven't yet signed up for our […]

Together for PURA Kickoff Meeting 1

Virtual

Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]

Together for PURA Kickoff Meeting 2

Virtual

Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as […]

South Bend Cubs Game to Benefit the PURA Foundation

Four Winds Field South Bend, IN, United States

Come out to Four Winds Field in South Bend, IN on August 8th to raise awareness for the PURA Syndrome Foundation! Every ticket purchased donates $3 back to the PURA […]

$14

Lemonade Stand for PURA

Belsan Bait & Tackle 4 Brook St, Scituate, MA, United States

Join us for our Together for PURA Lemonade Stand at Belsan Bait & Tackle on August 17, 2024 from 11 am - 3:00 pm in Scituate, MA. Buy a "virtual" […]

Adult Sibling Meet Up – September 2024

Virtual

Adult siblings, please join us Sunday, September 29 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven't yet signed up for our […]

Young Adult Sibling Meet Up – October 2024

Virtual

Young adult siblings, please join us Sunday, October 6 from 4:00-5:00 pm UTC+0 (UK time) for our first young adult (ages 13-17) sibling meet up! If you haven't yet signed […]

Pre-Teen Sibling Meet Up – October 2024

Virtual

Pre-teen siblings, please join us Sunday, October 13 from 4:00-5:00 pm UTC+0 (UK time) for our first pre-teen (ages 9-12) sibling meet up! If you haven't yet signed up for […]