10 events found.
Events
-
-
Embassy Suites by Hilton Grapevine 2401 Bass Pro Drive, Grapevine, TX, United States
-
-
Adult Sibling Meet Up – September 2025
VirtualAdult siblings, please join us Saturday, September 6 from 4:00-5:00 pm UTC+0 (UK time) for an adult (ages 18+) sibling meet up! If you haven't yet signed up for our […]
-
Young Adult Sibling Meet Up – September 2025
VirtualYoung adult siblings, please join us Sunday, September 7 from 4:00-5:00 pm UTC+0 (UK time) for a young adult (ages 13-17) sibling meet up! If you haven't yet signed up […]
-
Pre-Teen Sibling Meet Up – September 2025
VirtualPre-teen siblings, please join us Saturday, September 13 from 4:00-5:00 pm UTC+0 (UK time) for a pre-teen (ages 9-12) sibling meet up! If you haven't yet signed up for our […]
-
Young Sibling Meet Up – September 2025
VirtualYoung siblings, please join us Sunday, September 14 from 4:00-5:00 pm UTC+0 (UK time) for our first young (ages 4-8) sibling meet up! If you haven't yet signed up for […]
-
First Grandpops Meet-up
VirtualJoin us for our first Grandpops Meet-up! Check out our website at purasyndrome.org/grandpops and sign up for our email list here.
-
-
All are Welcome Meet-Up October 2025
VirtualAll are welcome for a meet-up of any families that can join us! Questions? Contact Melissa at m.vaught@pura-syndrome.org
-
-
Grandpops Meet-up – February 2026
VirtualPURA Grandparents mark your calendars! On February 28 at 1 pm CST, we will host a virtual GrandPOPS Meetup. Join us on Zoom to share our stories, photos, joys, and concerns. If […]
-
-
First Meet Up for PURA Families in India
VirtualThe PSF will be hosting a virtual meet-up for any of our families from India on Sunday, March 1, at 9:00 am IST. If you would like to join this […]
-
-
2026 PURA Syndrome Conference
Holiday Inn Munich - City Centre Holiday Inn Munich - City Centre Hochstraße 3,, Munich, Germany