• First Meet Up for PURA Families in India

    Virtual

    The PSF will be hosting a virtual meet-up for any of our families from India on Sunday, March 1, at 9:00 am IST. If you would like to join this […]

  • 2026 PURA Syndrome Conference

    Holiday Inn Munich - City Centre Holiday Inn Munich - City Centre Hochstraße 3,, Munich, Germany