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  • Grandpops Meet-up – October 2026

    Virtual

    PURA Grandparents mark your calendars! On October 11 at 2 pm CST, we will host a virtual GrandPOPS Meetup. Join us on Zoom to share our stories, photos, joys, and concerns. If your special grandchild is available, we would love to them, but we welcome photos too. Sign-up for our GrandPops email list here. Questions? […]

  • All are Welcome Meet-Up October 2026

    Virtual

    Let’s celebrate PURA Syndrome Awareness by getting together for a virtual meet up on Saturday, October 24th at 3:00 pm ET. We can share resources, connect and get to know […]

  • 2027 PURA Syndrome Conference

    Bahia Resort Hotel 998 West Mission Bay Drive, San Diego, CA, United States

    2027 PURA Syndrome Conference Save the Dates: June 25-27, 2027 in San Diego, California, USA https://youtu.be/kiZwLApN56Q