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7 events found.

Events

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Today
  • March 2023

  • Thu 16

    Meet-up: France

    March 16, 2023 @ 8:00 pm - 9:00 pm UTC+1
    Virtual
  • Wed 22

    Meet Up: United Kingdom Registry Meet Up

    March 22, 2023 @ 7:00 pm - 8:30 pm UTC+0
    Virtual
  • April 2023

  • Thu 27

    Meet Up: United States New Families

    April 27, 2023 @ 6:00 pm - 7:00 pm UTC-5
    Virtual
  • May 2023

  • Sat 20

    Meet Up: Caring Together

    May 20, 2023 @ 2:00 pm - 3:00 pm UTC-5
    Virtual
  • Wed 24

    Meet Up: Germany

    May 24, 2023 @ 7:30 pm - 8:30 pm UTC+1
    Virtual
  • Sat 27

    Meet Up: United Kingdom

    May 27, 2023 @ 10:00 am - 11:00 pm UTC+0
    Virtual
  • June 2023

  • Fri 23

    2023 PURA Conference

    June 23, 2023 - June 25, 2023
    Hinxton Hall Conference Centre Wellcome Genome Campus, Hinxton, Cambridgeshire, United Kingdom
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The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis, management, and health. Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

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©2023 PURA SYNDROME FOUNDATION
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