Jean and Kyle will be at the conference this year to share their experiences as parents and Co-Founders of Jack’s Tomorrow, including the recent research projects they have been funding to understand the disease and bringing us closer to a treatment and a cure for PURA Syndrome.
In-person registration: https://purasyndrome.networkforgood.com/…/65425-2024…
Virtual registration: https://purasyndrome.dm.networkforgood.com/…/2024…
