We’re excited to share that we’ve joined the Rare Epilepsy Network, a consortium of rare disorders working together on epilepsy research, advocacy and drug development.
We hope this partnership will help connect our community with the latest research in epilepsy, access to resources and clinical trials, and opportunities to advocate for research funding and issues important to people with epilepsy and their families.
#purasyndrome #rareepilepsy #epilepsyresearch #epilepsywarriors