This October marks a monumental milestone—10 years since the first papers were published making PURA Syndrome a named condition. As we commemorate a decade of research and community, we invite you to be a part of our journey forward.
Commemorating a Decade Since Discovery: Propelling Forward into the Future The PURA Syndrome Foundation is calling on YOU to help drive research, raise awareness, and support families impacted by PURA Syndrome. We’re encouraging our amazing community to create fundraising teams, host events, and rally together for this cause.
How You Can Get Involved Form a Fundraising Team: Gather your friends, family, and colleagues to raise funds for PURA Syndrome research and support.
Host an Event: From bake sales to virtual runs, every event makes a difference!
Donate to Our Virtual Auction: Contribute an item and help make our virtual auction a success.
Spread the Word: Share this post and use the hashtag #TogetherForPURA2024 to amplify our mission.
Got questions or need support getting started? Email us at info@pura-syndrome.org.
Together, we can make incredible strides and propel forward into a future filled with hope and advancements. 
Let’s make 2024 a year of impact and celebration!
Learn more and get started: https://givebutter.com/pura2024/