One of the big topics at the Annual Conference was our PURA Patient Registry. This is so vital to our understanding of PURA Syndrome and we need as many participants as possible. If you’d like to hear the latest update that Dr. Hunt gave at our conference, go to: https://youtu.be/BsGjQmKq88s
Visit our website at www.purasyndrome.org/registry to get started today! #purasyndrome #togetherwearestronger
