Today, October 23, 2024, we celebrate 10 years since the discovery of PURA Syndrome! Ten years of growth, successes, challenges, in-person gatherings, online meet-ups, happy moments, sad moments and everything in between.
On behalf of the PURA Syndrome Foundation, we thank you for your continued support in helping us achieve our mission. We are grateful to be able to serve our PURA Family and look forward to the exciting discoveries to come!
Spreading awareness about PURA Syndrome can happen all year long so please remember to:
- Tell someone about PURA Syndrome
- Help our Researchers by completing (or offer some time to a family member so they can complete) the PURA Syndrome Global Registry
- Donate to the PURA Syndrome Foundation
- Volunteer for the PURA Syndrome Foundation by filling out the form on our volunteer page
- Get your PURAPerfect gear at our Zazzle store where a portion of the proceeds is donated to the PURA Syndrome Foundation
- Use any of the following hashtags on your social media pages: #purasyndrome #puraawareness #purafoundation #puraperfect #togetherforpura2024