Please see below for a research opportunity from PURA Foundation Australia that is open to all PURA families across the globe!
Just launched – Speech and language research for PURA syndrome ! Researchers are looking for families to be part of an international communication research study for PURA syndrome.
Surveys are available in English, French, Dutch, German, Spanish, Portuguese, Italian, and Chinese. To be involved in this international research project, please email researchers at [email protected]
The PURA Foundation Australia, in collaboration with Translation Centre for Speech Disorders at the Murdoch Children’s Research Institute – MCRI is supporting research focussed on examining speech and language of PURA syndrome.
For more details, please visit
Help us give PURA syndrome a voice.