It is with great excitement and appreciation that we announce that a PURA family has come forward and offered to match donations up to $100,000 for our Together for PURA Campaign! Every donation to our Together for PURA Campaign made through Rare Disease Day, February 28, will be matched up to $100,000. If you have yet to give or would like to double your gift dollars, this is the time!
We are especially excited about this because we have been approached by a few organizations looking to fund research projects and this couldn’t have come at a better time! Doubling your dollars means more opportunities to fund research and support the PURA Syndrome Community.
At this special time of year, we want to thank you for your support and generosity to the PURA Syndrome Foundation. We are especially grateful to the more than 400 people who have donated to Together for PURA over the last few months. Your donations have raised almost $60,000 and paved the way for this amazing opportunity to reach our goal.
Let’s maximize the match and really make a difference! Join us and be part of real change and forward movement. For information, guidance and fundraising ideas, visit our website at www.purasyndrome.org/togetherforPURA or contact Nancy Boccia at [email protected]. Together, we can do this!