Together for PURA $25,000 Match!

Remember that amazing PURA family that generously offered to match donations up to $100,000 by Rare Disease Day? Well, they were so inspired by everyone’s generosity in getting us to $100,000 that they pledged AN ADDITIONAL $25,000 in matching donations! This challenge will be in effect until our PURA Conference at the end of June and is an amazing opportunity to help us reach our overall goal of $250,000. To date, we have raised just over $202,000 and our goal is to raise another $23,000 (or more!) to take full advantage of the matching gift. Corporate matches can also help us reach our goal so be sure to check if your employer will match your donation.

If you would like more information about why you should give, contact Nancy at nboccia@pura-syndrome.org. Please donate what you can and share the information with others. Thank you so much for your generosity!