by PURA Syndrome Foundation | Jan 14, 2025 | Annual Conference
This year’s conference will be special in so many ways. One way you can participate is to feature your PURAPerfect Child or your PURAPerfect Relative in the conference program and online! We are now offering families and friends the ability to purchase program...
by PURA Syndrome Foundation | Jan 14, 2025 | Annual Conference, News
We are in need of sponsors to support our annual conference! In supporting this conference, you provide our global medical team the chance to come together and make plans for future research to benefit PURA syndrome patients. Funds will go directly to funding our...
by PURA Syndrome Foundation | Jan 12, 2025 | Annual Conference, News
Register now for the PURA Syndrome Conference, an event taking place June 27-29, 2025. Join researchers, experts and our PURA community for in-depth sessions that will focus on: Research and studies about PURA Parent Discussions PURA Community Social Time And so much...
by PURA Syndrome Foundation | Nov 17, 2024 | Annual Conference, News
We are excited to announce the location of our 2025 conference! Please stay tuned for additional details and hotel information. #purasyndrome #purasyndromeconference
by PURA Syndrome Foundation | Jul 10, 2024 | Annual Conference
We are so grateful members of our Global Research Network, Dr. David Hunt (UK) and Dr. Robert Janowski (Germany), were able to join us in Chicago for our PURA Syndrome Conference. If you missed any of the sessions, they are currently available at the following link:...
by PURA Syndrome Foundation | Jun 29, 2024 | Annual Conference
2024 Conference videos are now available! Go to: www.puraconference.org/schedule
