by PURA Syndrome Foundation | Mar 7, 2025 | Annual Conference
Hear from the Manning family who attended last year’s PURA Syndrome Conference and why it was such a meaningful experience for them! Save the date for the 2025 PURA Syndrome Conference! June 27-29, 2025 in Dallas, TX Register at puraconference.org #PURASyndrome...
by PURA Syndrome Foundation | Feb 26, 2025 | Annual Conference
Hear from the Stafford family who attended last year’s PURA Syndrome Conference and why it was such a meaningful experience for them. From expert talks to heartfelt connections, this event is designed to inform, support, and bring our community together. Stafford...
by PURA Syndrome Foundation | Jan 14, 2025 | Annual Conference
This year’s conference will be special in so many ways. One way you can participate is to feature your PURAPerfect Child or your PURAPerfect Relative in the conference program and online! We are now offering families and friends the ability to purchase program...
by PURA Syndrome Foundation | Jan 14, 2025 | Annual Conference, News
We are in need of sponsors to support our annual conference! In supporting this conference, you provide our global medical team the chance to come together and make plans for future research to benefit PURA syndrome patients. Funds will go directly to funding our...
by PURA Syndrome Foundation | Jan 12, 2025 | Annual Conference, News
Register now for the PURA Syndrome Conference, an event taking place June 27-29, 2025. Join researchers, experts and our PURA community for in-depth sessions that will focus on: Research and studies about PURA Parent Discussions PURA Community Social Time And so much...
by PURA Syndrome Foundation | Nov 17, 2024 | Annual Conference, News
We are excited to announce the location of our 2025 conference! Please stay tuned for additional details and hotel information. #purasyndrome #purasyndromeconference
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