Together for PURA $25,000 Match!

by PURA Syndrome Foundation | Mar 20, 2025 | News, Together for PURA 2024-25

Remember that amazing PURA family that generously offered to match donations up to $100,000 by Rare Disease Day? Well, they were so inspired by everyone’s generosity in getting us to $100,000 that they pledged AN ADDITIONAL $25,000 in matching donations! This...

Caitlin Clark Signed Memorabilia for Auction!

by PURA Syndrome Foundation | Mar 17, 2025 | News, Together for PURA 2024-25

We have a PURA family connection to American professional basketball player Caitlin Clark’s family, and they generously donated the following signed sports items for us to auction off to benefit our Together for PURA fundraiser: Iowa Hawkeye long-sleeved t-shirt...

🎉We met our match! 🎉 March Madness Auction Coming Soon!

by PURA Syndrome Foundation | Mar 7, 2025 | News, Together for PURA 2024-25

Hooray!  We did it! Thanks to your generosity, we made it to over $100,000 on Rare Disease Day, February 28, and will receive a match of $100,000 from an equally as generous PURA family! Our overall goal for the Together for PURA campaign is $250,000, and we will...

Together for PURA Online Auction

by PURA Syndrome Foundation | Jan 14, 2025 | News, Together for PURA 2024-25

We have some exciting updates for you: In December, we announced that a PURA family has generously offered to match donations up to $100,000 for our Together for PURA campaign. This is an amazing opportunity to reach our goal of $250,000 by June 2025. Since the match...

Together for PURA $100,000 Match!

by PURA Syndrome Foundation | Dec 20, 2024 | News, Together for PURA 2024-25

It is with great excitement and appreciation that we announce that a PURA family has come forward and offered to match donations up to $100,000 for our Together for PURA Campaign! Every donation to our Together for PURA Campaign made through Rare Disease Day, February...

Day 6: Together for PURA Campaign

by PURA Syndrome Foundation | Oct 16, 2024 | Awareness, News, Together for PURA 2024-25

At our 2024 Conference, we launched our year-long Together for PURA Campaign, where we embarked on a bold mission to raise $250,000. These funds are important to continue and increase the initiatives of the global PURA Syndrome Foundation. Our top priorities and needs...