1/2 Page in 2026 Conference Program ($100)

Name

Email Address

Add a Picture

No file chosen

Add a Personal Message

By submitting you agree for your picture and message to be featured in the online and print versions of the 2026 conference program.

Search

Advocacy (2)
Annual Conference (40)
Awareness (19)
Fundraising (1)
Grandparents (1)
Networking/Outreach (2)
News (79)
Newsletter (18)
Research (16)
Resources (3)
Siblings (2)
Stories (5)
Together for PURA 2024-25 (9)
Uncategorized (1)

Recent Posts

2026 PURA Conference: Feature your PURAPerfect Child or Relative!
2026 PURA Conference Registration Open!
Happy Holidays 2025
Board Member Celena Lozano wins Award for NASW piece
Fall 2025 Reminders

PUBMED database search

Contact

The PURA Syndrome Foundation is a registered 501(c)(3) charity organization. Information on this website is not a substitute for personal medical advice. Families should consult a medically qualified physician in all matters relating to genetic diagnosis, management, and health. Information about PURA and genetics in general is a very fast moving area and while the information on this website is regarded as the best at the time of publication, some facts may change later.

Search

Facebook
Instagram

Skip to content

Open toolbar

Accessibility Tools

Increase Text
Decrease Text
Grayscale
High Contrast
Negative Contrast
Light Background
Links Underline
Readable Font
Reset